About Us

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What’s behind “It’s Not Funny”

“It’s Not Funny” is a community action that sheds some light on how people living with Parkinson’s Disease have reinvented themselves. It does this by telling their stories through photography, film and words. We want to tell the Australian public that Parkinson’s disease is not just an old person’s disease. More people in the prime of their lives are being diagnosed and then go into hiding, uncertain, and even fearful, of how their friends, work colleagues and the general public will perceive their condition. We want to help them feel at ease with the disease, with dignity and in a positive, light hearted way.

We’re not about raising funds for research or funding the running of an organisation either, we are about raising awareness.

All too often the awareness activities focus too much on the ‘dark’ side of the disease, which can leave you feeling impotent and depressed. You’re constantly hearing the bad news about Parkinson’s disease. We think it’s time to tell others about the brighter side of living with the condition.

Being diagnosed with Parkinson’s is a life-changing piece of news that nobody wants to receive, but it’s not all bad. By sharing the personal stories of people living with the disease we reveal a positive aspect to this diagnosis. Being positive opens doors to a life well lived. Perhaps you’ll reinvent yourself, perhaps you’ll go and do those things you’ve always put off, perhaps you’ll contribute to research, perhaps you’ll connect with others in the community to share your positivity and help others to live well too.

Indeed, science is beginning to reveal that positive attitudes, community involvement, physical activity and social interactions are all good things for people with PD. You’ll find there’s no better evidence than the very people themselves and the personal stories they share of the power of being positive with PD.

We are also publishing a book

To raise public consciousness and lay bare some of the facts, we are publishing a photographic book of some of the people who are living in a positive way with Parkinson’s Disease.

This beautiful book will become a collectable item and will be offered to raise money for future on-going awareness campaigns.

We are always thinking about further awareness activities, do you have any ideas?
Do you have any suggestions?

The team

John Fryz
John Fryz – The Photographer

From the red dirt of outback to the high life of Europe, debonair and down to earth, John is good at what he does. Following his passion in life – photography – John’s career as press photographer, and then working in editorial and design,  has taken him from outback Queensland to the high life of Italy and Europe.

John now focuses on personal work expanding his particular love for landscape and people photography, merging these areas of interest with his commercial work. Often with a reportage influence, his work is characterised by intriguing composition, vibrant colour saturation and dramatic lighting.

Visit John’s website and have a look at some of his other photographs…

Maïté Barbé – The Coordinator

Maïté believes the most valuable things in life are best shared. As many good listeners she loves a coffee and a personal story. Whatever the tone, pitch or colour she knows that genuine voices are the soundtrack of our humanity. Maïté’s career in Communications, working in advertising and marketing in both private and public organisations has led her to reinvent herself in arts management.

An active community philanthropist for the past 16 years in community radio, mind and spiritual education and healthcare, she understands that skills, experience, knowledge and compassion are key to any collective effort. She has also learned community spirit fades without a true sense of connection and the desire to drive change.

Maïté is passionate about the benefits of arts in healthcare and wellbeing. For her, It’s not funny is the red carpet for Parkinson’s disease heroes who have an appetite for Life!

Listen to Maïté presenting Trampoline..
Beate Duesterwald – The Digital Strategist

Beate jumped in without hesitation, eager to give “It’s Not Funny” the same chance to shine as bright as any major brand. Her knowledge of the digital space is proving to be a key component in adopting the internet space to communicate our messages in a targeted and efficient way. Her digital strategies are crucial for a project like ours.

Ask her about how she’s helping…
John Peplow – Branding & Concept

Determined as a mountain goat, John is the prime shaker & mover in the “It’s Not Funny” team.

What does he do with other brands?….
Gary Latham – MC with a difference

Gay is a bit of a comedian…

Go and visit Gary at the salon…